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Letters to the Editor is a periodic function. We welcome all feedback and can publish a variety. We edit for size and readability and require full names.
Many readers responded to our data-driven protection of how moral and spiritual directives issued by the U.S. Convention of Catholic Bishops have an effect on care choices at Catholic and Catholic-affiliated hospitals in the USA. And we encourage different readers to share their suggestions.
A communications specialist in Seattle acknowledged her opinion bluntly in an X publish.
“An increasing number of girls are operating into limitations to acquiring care as Catholic well being programs have aggressively acquired secular hospitals in a lot of the nation.”Faith is harming healthcare. https://t.co/O4L9mIzP5K
— JoAnne Dyer (@7Madronas) February 27, 2024
— JoAnne Dyer, Seattle
The Proper to Separation of Church and Care
At my most up-to-date OB-GYN appointment, I used to be warned that our greatest hospital, Covenant Medical Middle, is affiliated with the Roman Catholic denomination, as is its string of main care and different clinics, Grace Clinics.
Making an attempt to regain some sense of management over my physique, I made a decision to create an advance well being directive to clarify I don’t wish to be taken to any medical facility related to that denomination, to keep away from my medical care being curtailed or impacted by moral and spiritual directives, referred to as ERDs, issued by Roman Catholic bishops (“The Highly effective Constraints on Medical Care in Catholic Hospitals Throughout America,” Feb. 17). To do that, I wished to know which services are so affiliated. It is vitally arduous to search out that out.
First, I checked out Grace Clinic and Covenant Medical Middle web sites. No point out of affiliation with the church, or ERDs, or how ERDs restrict the sorts of medical remedies a affected person can be supplied (and even knowledgeable of the existence of).
After I known as Grace Clinic, they denied affiliation with the Catholic Church. After I known as Covenant Medical Middle, additionally they denied affiliation. They’re owned by Windfall, which is Roman Catholic, although it’s a must to do a deep dive into the web site to determine that out.
Both the workers are mendacity or are saved in ignorance so the sufferers can be saved in ignorance. How can a affected person decide whether or not a hospital will deny them care due to non secular beliefs, if the group conceals its affiliation with stated beliefs?
These hospitals have the proper to imagine no matter they need. It seems they presently even have the proper to misinform sufferers about it. How can sufferers learn well being care shoppers if they’ll’t entry the data they want, and are affirmatively given incorrect info from the organizations?
I’ve contacted Windfall by means of its web site asking whether it is affiliated with the Roman Catholic Church and, if that’s the case, the place I can discover a record of sorts of sufferers that received’t be handled in accordance with American Medical Affiliation requirements, in addition to which remedies, procedures, and medicines won’t be offered or offered solely on a restricted foundation due to that affiliation.
I’ve heard nothing.
— Helen Liggett, Lubbock, Texas
An assistant professor on the Cincinnati Kids’s Hospital Medical Middle additionally weighed in on X:
Essential reporting from @KFFHealthNews on the impression of Catholic hospital care together with their ethics overview course of:https://t.co/0k2mJpPhY0
— Elizabeth Lanphier (@EthicsElizabeth) February 19, 2024
— Elizabeth Lanphier, Cincinnati
Life at All Prices Is Expensive
One side of IVF that’s not being mentioned is the discarding of embryos discovered to have critical medical defects (‘What the Well being?’: Alabama Court docket Guidelines Embryos Are Kids. What Now? Feb. 22). For instance, a household could carry a devastating situation and want to display potential offspring, or defects could come up spontaneously. The Alabama Supreme Court docket’s determination means that these embryos, too, have to be implanted.
The court docket’s determination additionally impacts infants born with extreme defects. How a lot help have to be offered a child born with out components of the mind and cranium (anencephaly), which isn’t terribly unusual? Or one born with out kidneys? Or one with a most extreme type of brittle-bone illness (osteogenesis imperfecta), the place each contact can break bones? It sounds as if Alabama legislation now requires most help in each occasion — for my part, this is able to be holier-than-thou sadism. How does the court docket outline life? Merely a beating coronary heart? I can’t think about a nurse or physician not leaving/quitting when pressured to torture these infants. Then there’s the mother and father’ torment. That is godly?
— Gloria Kohut, Grand Rapids, Michigan
On X, an anesthetist and emergency medication physician promoted the “What the Well being?” podcast episode that delved into the subject:
Try the newest episode of KFF Well being Information’ “What the Well being?” podcast, the place the Alabama Supreme Court docket’s ruling on embryo rights sparks a nationwide debate. Plus, doable abortion bans and Catholic hospital care. Hear at: https://t.co/4hrsEaWXVb#well being, #healthpolicy, …
— David Moniz (@DrDavidMoniz) February 22, 2024
— David Moniz, Chilliwack, British Columbia
Distilling Statistics on Ladies’s Consuming
Whereas the distilled spirits trade is against extreme consumption by any section of our society, it’s necessary to notice that your current article on girls and alcohol failed to incorporate federal knowledge exhibiting reductions in alcohol abuse amongst girls in the USA (“Extra Ladies Are Consuming Themselves Sick. The Biden Administration Is Involved,” March 28). For instance, the newest Nationwide Survey on Drug Use and Well being knowledge signifies binge-drinking amongst girls 21 and older declined greater than 6% up to now 5 years (from 2018 to 2022).
Moreover, claims within the article that the covid-19 pandemic “considerably exacerbated binge-drinking” should not supported by a number of federal knowledge sources that point out that the pandemic didn’t produce lasting will increase in ingesting or dangerous ingesting.
As an example, a 2023 examine utilizing federal knowledge confirmed that, whereas gross sales did rise on the very starting of the pandemic, this didn’t essentially translate to elevated binge-drinking or general consumption within the months following. Fairly, ingesting decreased — each days per 30 days ingesting and drinks per day — as did binge-drinking. Furthermore, the identical federal NSDUH knowledge referenced above signifies almost 9 out of 10 U.S. adults 21 years and older (89%) say they drink the identical quantity or lower than they did pre-pandemic.
The article additionally cites an outdated International Burdens of Illness report revealed in 2018 to again up claims that “no quantity of alcohol is protected” whereas ignoring the up to date GBD report revealed in 2022. Importantly, this most up-to-date GBD analysis concluded there are ingesting ranges “at which the well being threat is equal to that of a non-drinker” and that “for people age 40+, ingesting small quantities of alcohol is just not dangerous to well being.”
Reporting on alcohol analysis gives necessary info for shoppers, so it’s crucial that such reporting accurately displays the newest proof on alcohol and well being. We encourage all adults who select to drink — men and women — to drink sparsely, to comply with the recommendation of the Dietary Tips for People, and to speak to their well being care suppliers who may also help decide what’s greatest for them primarily based on particular person components and household historical past.
— Amanda Berger, vp of science and well being, Distilled Spirits Council of the USA, Washington, D.C.
A lawyer who makes a speciality of preventing insurance coverage denials advisable our March “Invoice of the Month” function in an X publish:
All too typically insurance coverage suppliers declare medical remedy is just not medically essential. This text explains a #Cigna denial. #healthinsurance #medicalnecessity https://t.co/rpMwsSOOup
— Scott Glovsky (@ScottGlovskyLaw) March 25, 2024
— Scott Glovsky, Pasadena, California
Working Inside a Damaged Well being Care System
Because of Molly Citadel Work for the superb article concerning the England household’s struggles with our damaged well being care system (“A Mother’s $97,000 Query: How Was Her Child’s Air-Ambulance Journey Not Medically Obligatory?” March 25). One avenue of decision that was not famous in your wonderful article is the California Division of Managed Well being Care. I’m a doctor, and we had a distinct, but additionally very costly ($90,000), well being care invoice. It took two years and two appeals to that division, however, in the end, we have been reimbursed by our insurance coverage firm. It is a useful resource that must be extra extensively recognized.
— Erica Buhrmann, Berkeley, California
An Unfair Burden on These Most in Want
It’s obscure why these most weak in society, who’ve issue buying medical insurance, are required to pay extra for companies with the identical medical doctors and services than insurance coverage corporations pay. Insurers profit from “negotiated pricing.” These with no insurance coverage are required to pay the complete “inflated” invoice for medical companies. Most occasions, the distinction between the quantity a health care provider or medical supplier payments, in contrast with the precise cost medical doctors obtain from insurance coverage corporations, is roughly 20% of the quantity billed.
It’s patently unfair to require uninsured sufferers to pay greater than insurance coverage corporations pay. Uninsured people have an unfair bargaining energy, in contrast with insurance coverage corporations. instance is demonstrated in your article of the girl who obtained an uncovered emergency medical flight earlier than her demise, and her heirs have been left with an outrageous invoice of $81 (“With out Medicare Half B’s Protect, Affected person’s Household Owes $81,000 for a Single Air-Ambulance Flight,” Feb. 27). If her household was informed they have been liable for $81,000 for the air ambulance, the transport wouldn’t have occurred.
The apply of holding uninsured individuals liable for “complete” medical payments typically, in essence, causes somebody who doesn’t have protection — principally due to affordability — to complement the income of medical doctors and medical suppliers by being required to pay the total inflated quantity billed for medical companies.
Insurance coverage corporations defend this apply of “negotiated pricing,” when, in essence, it’s used to pressure those that can least pay to complement losses suffered by the medical doctors for discounted funds from insurers.
There must be regulation that prohibits medical suppliers from price-gouging the uninsured, forcing them to complement medical doctors’ and suppliers’ earnings to make up for underpayments from insurers. Many occasions, uninsured people are already dwelling at or close to poverty ranges earlier than incurring surprising medical obligations. Being hit with a shock invoice for an air-ambulance trip costing $81,000 is ample to trigger the affected person to file for chapter. Within the U.S., the No. 1 purpose individuals file for chapter safety is due to medical payments.
Our present system of administering well being care and funds for such is damaged and must be fastened. As soon as this disparate system of funds is rectified, well being care ought to develop into way more accessible to most people.
— Ronald B. Kaplan, Holbrook, Massachusetts
On X, a public well being scholar shared our article concerning the unintended effects of the anti-vaccine motion:
A TN legislation now means they foster mother and father, social employees & different caregivers can’t present permission for childhood vaccines — a necessary a part of well being care for teenagers. We have to take antivaxxers significantly as a result of they’re significantly harming public well being. https://t.co/6jX7ltNq4i
— jenn kauffman ✨ (@jennaudrey) March 12, 2024
— Jenn Kauffman, Washington, D.C.
Not Vaccinated? Get Education Elsewhere
I’m a father and a main care doctor. I simply learn Amy Maxmen’s article “How the Anti-Vaccine Motion Pits Parental Rights In opposition to Public Well being” (March 12) and commend her for her balanced and fact-based presentation.
I really feel that an necessary side is lacking from such articles — that being the rights of nearly all of mother and father who help vaccination to have their youngsters within the most secure doable setting in public faculties. We all know that no vaccine is ideal, and that our kids are nonetheless in danger for measles, covid, and different ailments, regardless of benefiting from the confirmed advantages of vaccines.
I imagine that oldsters who train their rights to not have their youngsters vaccinated must be required to homeschool, or to ship their youngsters to non-public faculties having insurance policies with which they agree. I’m conscious that solely a tiny share of People would agree with me.
— John Cottle, Mendocino, California
Medical psychologist Carl Hindy appeared impressed by our article on a expensive new postpartum melancholy remedy:
[Instead of gender reveal parties, we can have Pharma baby showers 😢] A New $16,000 Postpartum Despair Drug Is Right here. How Will Insurers Deal with It? – KFF Well being Information https://t.co/1CVZEX7yf8
— Carl Hindy, Ph.D., HSP, Medical Psychologist (@DrCarlHindy) March 18, 2024
— Carl Hindy, Exeter, New Hampshire
Tending to New Moms’ Wants
It was heartbreaking to learn that non-public well being insurers have successfully delayed the provision of a revolutionary remedy for postpartum melancholy, a debilitating situation that makes it tough for brand new mother and father to care for his or her households, work, and even get away from bed (“A New $16,000 Postpartum Despair Drug Is Right here. How Will Insurers Deal with It?” March 12).
As one of many 1 in 5 new moms who struggled with this horrible sickness when my very own son was born, I can solely hope zuranolone is made extensively obtainable very quickly. As an advocate for the rights of pregnant employees, I hope that psychological well being care suppliers are conscious that there’s one other new and revolutionary software that’s at their disposal right this moment to help sufferers combating prenatal and postpartum psychological well being circumstances. A brand new federal legislation, the Pregnant Employees Equity Act, offers employees the proper to obtain modifications at work wanted for pregnancy-related psychological well being circumstances. The Pregnant Employees Equity Act, which applies to employers with 15 or extra workers, requires they supply cheap lodging for being pregnant, childbirth, and associated medical circumstances, as long as it doesn’t impose an undue hardship. For instance, a brand new mom experiencing a perinatal psychological well being situation could also be eligible to obtain a modified schedule, day off to attend psychological well being appointments, a extra non-public workspace, permission to earn a living from home, or another “cheap lodging” that may deal with their wants. Psychological well being care suppliers ought to help their sufferers by discussing their work-related challenges, serving to to determine office modifications, and writing efficient work notes to their sufferers’ employers.
Well being care suppliers and their sufferers can entry free sources from the College of California Regulation-San Francisco Middle for WorkLife Regulation on office lodging for perinatal psychological well being circumstances at pregnantatwork.org. Well being care suppliers or workers with questions can contact the Middle for WorkLife Regulation’s free and confidential authorized helpline at 415-703-8276 or hotline@worklifelaw.org.
— Juliana Franco, San Francisco
Concern of Needles Is Generally Unfounded
I learn your article “Needle Ache Is a Huge Downside for Youngsters. One California Physician Has a Plan” (March 20). I can let you know from expertise that the needle is just not the supply of the ache. After a bone marrow transplant from a donor, I needed to get all these childhood vaccines and people for adults 65 and older. The needle stick can barely be felt; it’s the medicine entering into that’s painful. The realm you get the vaccine in is then sore for a number of days. That has been my expertise.
— Patsy Rowan, Los Angeles
Radiologist Ian Weissman chimed in on X about pain-reduction methods:
Researchers have helped develop a 5 step plan to assist stop what they name “useless ache” for kids getting injections or their blood drawnhttps://t.co/mCi8Tx6ILn
— Ian Weissman, DO (@DrIanWeissman) March 29, 2024
— Ian Weissman, Milwaukee
Knowledgeable on the Distinction Between Mis- and Disinformation
First, I’m grateful in your continued investigative reporting on covid-19.
Second, I’m writing to share a perspective that I belief you may share with the author of “4 Years After Shelter-in-Place, Covid-19 Misinformation Persists” (April 1). My focus is on the time period “info” and its variants.
Particularly, I discover it useful to tell apart linguistically three variants:
- “Data” is info that one gives to others that the informer believes to be correct.
- “Misinformation” is info that one gives to others that the informer believed was correct, but was offered info that signifies the data was lower than correct at some degree. As such the informer points an erratum and corrects the “mis” of the “mis-information.”
- “Disinformation” is info that one gives to others with demonstrable data that this info is just not correct and shares with an intent to illicit thought and motion for ulterior motives — motives which might be typically nefarious and should end in hurt, akin to rising particular person and/or inhabitants morbidity and mortality.
I discover the conflation of “mis” and “dis” to be in and of itself dangerous to those that convey “mis” after which right in addition to giving those that use “dis” for less-than-honorable functions cowl, a protected haven, and a “get-out-of-jail card.”
For instance, it’s well-known that Fox Information internally adhered to info primarily based on scientific knowledge and medical proof through the covid-19 pandemic state of emergency. Concurrently, it parlayed info externally that may solely be characterised as “dis.”
What I discover shocking is the very fact (I stand to be corrected ought to I be misinformed) that nobody has discovered no less than one particular person who acted upon Fox Information’ disinformation that resulted in morbidity and/or mortality — or wrongful demise litigation.
Sustain the nice work.
— Ed Shanshala, CEO of Ammonoosuc Neighborhood Well being Providers, Littleton, New Hampshire
A communications specialist outdoors Chicago known as out disinformation in an X publish:
Disinformation is public well being enemy 1. Those that begin it and unfold it are poisonous for our society.
— Michelle Rathman 🟧 (the true one) (@MRBImpact) April 1, 2024
— Michelle Rathman, Geneva, Illinois
States Ought to Not Spend Opioid Settlement Money on Unproven Tech
Aneri Pattani did a wonderful job reporting on the occasion in Cell, Alabama, on Jan. 24, the place the Poarch Band of Creek Indians offered a test for $500,000 from the tribe’s opioid settlement funds to the Helios Alliance (“Statistical Fashions vs. Entrance-Line Employees: Who Is aware of Greatest Tips on how to Spend Opioid Settlement Money?” March 5).
Helios, which incorporates for-profit and nonprofit organizations, will use funds to construct a proprietary simulation mannequin to assist leaders determine the best way to spend settlement funds. In line with Helios, the preliminary system won’t be accomplished earlier than spring 2024.
As a digital product supervisor for the previous 20 years, I perceive the potential of know-how to enhance well being care, however settlement funds shouldn’t be financing early-stage, proprietary applied sciences developed by private-sector corporations. Helios’ pitch is: “… spend 5% [of settlement funds] so that you get the most important impression with the opposite 95%,” says Rayford Etherton, who fashioned the alliance. However given the nationwide settlement is $50 billion over the following 18 years, 5% signifies that $2.5 billion would go to a doubtlessly proprietary answer.
Whereas the promise of a brand new know-how simulation mannequin is thrilling, it’s additionally high-risk. Furthermore, whereas revered specialists like Stephen Loyd are concerned with Helios, there aren’t skilled synthetic intelligence engineers, digital product specialists, knowledge scientists, or safety specialists listed on the Helios web site.
Any know-how developed utilizing opioid settlement funds must be open-source and free to all states. Extra transparency from Helios is required to explain possession, consumer entry phrases, and licensing charges.
Settlement funds must be deployed to confirmed, evidence-based options. Given the opioid disaster has been raging for 20 years, well being care specialists have already got data-driven insights on the best way to repair this: enhance entry to medication-assisted remedy; cut back limitations to doctor licensing for buprenorphine, methadone, and naltrexone; enhance training in faculties; improve social companies akin to employment and little one care; and enhance funding to legislation enforcement to combat unlawful opioids (particularly, fentanyl).
Fairly than placing giant settlement investments right into a not-yet-built simulation mannequin, states ought to use a human-centered design strategy primarily based on analysis from sufferers, suppliers, members of the family, and neighborhood teams which have been battling the opioid disaster for many years to drive preliminary investments throughout the ecosystem of opioid disaster drivers. As soon as Helios has a working simulation product examined and in manufacturing, states can take into account small investments to pilot utilization and see if the product really produces the specified outcomes.
The continuing mantra of “public-private partnerships” is a superb concept, however the public sector shouldn’t find yourself paying the invoice and taking up all the chance.
— Kelly O’Connor, Washington, D.C.
A professor in Weill Cornell Drugs’s Division of Inhabitants Well being Sciences shared insights on X:
Fascinating article. On the one hand “Knowledge doesn’t save lives. Numbers on a pc don’t save lives,” vs the town has an obligation to make use of its settlement funds “in a means that’s going to do essentially the most good…as a substitute of merely guessing.” https://t.co/w4QJ7zOkgM
— Bruce Schackman (@BruceSchackman) March 6, 2024
— Bruce Schackman, New York Metropolis
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